Interessengemeinschaft Hämophiler e.V.

A project by Interessengemeinschaft Hämophiler e.V. 

The Interessengemeinschaft Hämophiler e.V., founded in 1992, is a nationwide patient association that represents the interests of people suffering from a congenital bleeding disorder and their relatives, and maintains regional offices in various German states.

The Haem-o-mat v2

We kindly ask you to work through the questionnaire below – it will only take you about 5-10 minutes. We will then be able to provide you customized sports recommendations based on your preferences and hemophilia reality. Enjoy!

Relation

Relation to hemophilia

Relation

Your relation to hemophilia

Details

Personal details

Age (in years)

Select your age group/the age group of the person affected.

Body height (cm)

Enter the height of you or the affected person in centimeters.

Body weight (in kg)

Enter your body weight/the body weight of the affected person in kilograms.

Form of hemophilia

Which form of hemophilia has been diagnosed?

Severity of hemophilia

What is the severity of hemophilia?

Inhibitors

Have you been diagnosed with hemophilia (with inhibitors)?

Amount of bleeding in the past 6 months

In the last 6 months, how many bleedings have you experienced?

Has the bleeding occurred more than once in the same area?

In what area was it?

dominant = thrown side (Possible multiple choice)

The cause(s) of bleeding in the last six months

In the last six months, what has caused the bleeding

Did the bleeding occur as a result of participation in sports?

Has hemophilic arthropathy been diagnosed?

dominant = thrown side

Problems

Problems restricting mobility due to orthopaedics

Problems in the shoulder joint (dominant side)

Does the dominant side of the shoulder joint have orthopedic problems that restrict mobility?

Problems in the shoulder joint (non-dominant side)

Does the non-dominant side of the shoulder joint have orthopedic problems that restrict mobility?

Problems in the elbow joint (dominant side)

Does the dominant side of the elbow joint have orthopedic problems that restrict mobility?

Problems in the elbow joint (non-dominant side)

Does the non-dominant side of the elbow joint have orthopedic problems that restrict mobility?

Problems in the wrist (dominant side)

Does the dominant side of the wrist have orthopedic problems that restrict mobility?

Problems in the wrist (non-dominant side)

Does the non-dominant side of the wrist have orthopedic problems that restrict mobility?

Problems in the hip joints

Are there orthopedic problems in the hip joints that limit mobility?

Problems in the knee joints

Are there orthopedic problems in the knee joints that limit mobility?

Problems in the ankle joints

Are there orthopedic problems in the ankle joints that limit mobility?

Problems with the spine

Are there orthopedic problems with the vertebral column that limit mobility?

Have you been diagnosed with any of the following cardiovascular diseases?

Congenital heart defect, heart attack, heart failure (cardiac insufficiency), heart valve stenosis, cardiac arrhythmia, cardiomyopathy, coronary heart disease (CHD), angina pectoris, high blood pressure, diabetes mellitus, peripheral arterial disease, stroke or other cardiovascular diseases

Performance

physical performance

Endurance performance

Based on the following scale, determine your or the person's endurance performance:

Coordination (dexterity)

Based on the following scale, determine your or the person's coordination ability (dexterity):

Strength

Based on the following scale, determine your or the person's strength:

Mobility

Based on the following scale, determine your or the person's mobility:

current physical performance

Based on the following scale, determine your or the person's current physical performance:

Completion

Please note!

The following individualized sports recommendations are based on generally accepted knowledge around sport and hemophilia. Please note, that this should never replace the individual consultancy with your health care provider. You should always align your individual sportive lifestyle with your hemophilia treatment center.